Eastbourne Borough Council is lighting up the Town Hall clock in blue to mark World Neurofibromatosis Awareness Day on Tuesday, May 17. 

This year is also the 40th anniversary of Nerve Tumours UK, a charity that supports people of all ages living with neurofibromatosis, a rare genetic condition that forms tumours on nerve endings which can lead to blindness, deafness, learning disabilities and disabling pain. 

The Mayor of Eastbourne, Councillor Pat Rodohan, said: “Some 26,500 people have Neurofibromatosis in the UK but many people have not heard of this condition which can bring very serious health difficulties. 

“Nerve Tumour UK provides a great support network and voice for those with Neurofibromatosis and in its 40th year is aiming to raise £26,500 – a £1 donation for each person that has it in the UK.”

For more information visit nervetumours.org.uk or to donate, go to justgiving.com/campaign/shine-a-light-on-nf 

Eastbourne Town Hall clock will join more than 100 landmarks across the UK, including the National Theatre in London and the Spinnaker Tower in Portsmouth, to be turned blue for World Neurofibromatosis Awareness Day.