A woman has launched a support group for those who suffer from a debilitating condition that affects as many as one in ten women.

The Endometriosis UK East Sussex Group will offer peer-to-peer support and a chance to share stories, information and advice – online and at in-person meet-ups and events.

The volunteer-led group was set up by Lydia Eccleston, and its first event is due to take place this month.

Endometriosis is a gynaecological disease which affects the physical and mental health of more than 1.5 million women.

The group said that many of them desperately needed support and information to help them understand this chronic condition.

The main symptoms include chronic pelvic pain, painful periods, painful bowel movements, pain during or after sex and fatigue.

She said: “It took 11 years of appointments, delays and frustration before I was finally diagnosed formally with endometriosis.

“An Endometriosis UK support group back home in Staffordshire was invaluable both for navigating NHS systems and emotional support during that time.

“When I moved to Brighton nearly two years ago, for an exciting new job, I was almost back to square one, faced with new NHS waiting lists, consultants and systems as I tried to get the care I need.

“It made me determined to create a new group here in East Sussex to support others like me in the area.”

Email  EastSussexGroup@endometriosis-uk.org